In lieu of flowers, we are celebrating Connie's life by fundraising for Cure SMA. Spinal Muscular Atrophy (SMA) shook the Sontag/Kampschmidt family when Mila Rae was diagnosed in 2017. With much less hope at the time, our family rallied around Connie's niece, Holly, and her daughter, Mila. Mila is now 7 and meeting milestones we never imagined were possible. Our family is so grateful for everything Cure SMA does for Holly, Mila, and all families impacted with this disease.
SMA is a disease that robs people of their physical strength, significantly impacting an individual’s ability to walk, swallow, or breathe. It affects one in 11,000 births in the United States, and one in 50 people is a genetic carrier. There is no cure yet, but there is great reason for hope. And that is why I am fundraising for the Cure SMA!
Research funded by Cure SMA is driving therapies that are changing the course of SMA. Together, we have the power to meet the ever-changing needs of all people with SMA and build a stronger future for generations to come.
Support me by making a tax-deductible gift or registering to run with me today! Together we are stronger and can make a difference.
Thank you!